About a week ago, I had the sick to my stomach feeling when I observed over the course of a few days that his eyes were just not right. Even though his EEG in Boston showed no epileptic activity, Jacob had a 72-hour EEG shortly after his Infantile Spasms that showed no epileptic activity but he was having seizures. His neurologist said that they may have been coming from "deeper structures".
I am hoping that if I did see seizures that they are remnants from a healthy brain picking up the pieces. Otherwise, why have children remain on anti-seizure medication for 6 months to a year after surgery if there is no epileptic activity? The naughty tissue in the left hemisphere worked tirelessly to dominate the rest of his brain for so long. And when I studied the EEG in Boston and thought the tissue in the left hemisphere was producing pathetic electrical discharges, I was wrong. The tissue is pretty angry in isolation.
Jacob's surgery was over a month ago. If not for his scabby incision, who would ever know? His recovery is fascinating to me. One half of a brain for all of this boy. No regrets.