Friday, February 26, 2010

Day 26

The video includes pre- and post- evaluation

Dear "Followers"

To all who follow Jacob's blog, who carry the burden of our pain because we love Jacob so much... We would give an arm and a leg and even a brain if we could. We will see Jacob through this as we have done in this past year with our strength and support. Jacob is our hero. His will and desire are unparalleled and his tiny face gives us great hope.

Today will be a day to celebrate his accomplishments in the Constraint Therapy Program. As always, we have much to be grateful for. GO JACOB!

Thursday, February 25, 2010

Day 25

Today Jacob was photographed to be in a brochure for Hasbro's Constraint Therapy Program. Tomorrow afternoon we will go to Hasbro Children's Rehabilitation Department to have his cast removed. We will be posting video of both his pre- and post- therapy evaluations.

Wednesday, February 24, 2010

Day 24

Jacob's EEG revealed a pattern characteristic
of the Infantile Spasms he experienced at six
months old. He will begin a new course of
drug treatment for the next three weeks and
then will have another EEG to see if the
pattern has been resolved.

Tuesday, February 23, 2010

Day 23

Jacob's walker came in today! Tomorrow morning we will see Jacob's pediatric neurologist to discuss the results of his EEG from last week.

Monday, February 22, 2010

Sunday, February 21, 2010

Day 21

Today was Jacob's last day off from therapy
until the cast is taken off on Friday.

Saturday, February 20, 2010

Friday, February 19, 2010

Day 19

Jacob will have therapy again tomorrow
before a well deserved day off on Sunday.

Thursday, February 18, 2010

Day 18

This video clip actually is from yesterday.

Jacob had his cast change this morning and
next Friday it will be taken off.

Wednesday, February 17, 2010

Tuesday, February 16, 2010

Monday, February 15, 2010

Sunday, February 14, 2010

Day 14

Jacob IS able to pull up to stand.

On his day off from therapy, Jacob will watch
his brother ice skating and walk through the
Newport Winter Festival.

Happy Valentines Day!

Saturday, February 13, 2010

Day 13

On his day off from therapy, Jacob visited with his Grammy and his Auntie Jen, Olivia, and Hayden.

After two weeks of therapy, Jacob frequently uses his right arm and hand, although he still tries to use his cast and his feet. He is able to give a high-five and is beginning to wave goodbye with his right hand. Jacob explores with his right hand when he is carried around the house. His greatest frustration continues to be his mobility but he is nearly able to pull himself up to stand. His walker should arrive within the next few weeks and will give him a greater sense of independence as well as the stability to improve his sense of balance.

Jacob is a lovely, special baby.

Friday, February 12, 2010

Thursday, February 11, 2010

Day 11

Jacob did well at Hasbro today and now we
wait for the results. The video includes a clip
of a seizure Jacob had last Sunday.

Wednesday, February 10, 2010

Day 10

Tomorrow morning, Jacob will go to Hasbro
Children's Hospital for a six-hour EEG with
video. We are hoping that this will help to
diagnose the suspected seizure activity that
we have observed over the last few months.
He will resume therapy on Friday and will
"make-up" for tomorrow on the following

Tuesday, February 9, 2010

Monday, February 8, 2010

Sunday, February 7, 2010

Day 7

Today was Jacob's first day off from therapy.

Saturday, February 6, 2010

Day 6

Jacob enjoyed his left fingers for a short time
this morning.

In the first clip, Jacob reaches with his right
hand when prompted even though his left
hand is free. In the second clip, Jacob holds
his fork with his right hand for an extended
period of time.

At the grocery store, Jacob used his right hand
to turn the wheel of his shopping cart car for
the very first time.

Friday, February 5, 2010

Day 5

Tomorrow morning, Jacob will have his cast
removed to take a bath and then the cast will
be replaced until next Friday.

Thursday, February 4, 2010

Wednesday, February 3, 2010

Tuesday, February 2, 2010

Monday, February 1, 2010