Tuesday, May 18, 2010
Neurosurgical Consult
Jacob is a candidate for neurosurgery - a functional hemispherectomy. Basically, the damaged left hemisphere of Jacob's brain would be disconnected from the functioning right hemisphere. Scary. We are going to proceed with a second opinion after discussing this with his pediatric neurologist. In preparation for this appointment, I had also ordered Jacob's medical records from when he was born and learned that the umbilical cord had been wrapped around his neck and his APGAR scores for skin tone at 1 minute and five minutes were 0 and 1, which means he was grayish blue. He wasn't described as pink until about an hour after he was born. One door opens, another closes. I always wanted to know when Jacob had his stroke and thought it was in utero but it may have been at birth. But no Grammy, you were right. It doesn't really matter.
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It's weird how it doesn't really matter. But it does. But it shouldn't. Or should it?
ReplyDeleteAh. I don't know. But I've spent the last three-ish years chasing down every answer I could possibly find. Maybe it just gives me something to do...other than dwell in what-if-ville.
I know it's scary news. But it's hopeful too.
Where are you going for a second opinion?
...danielle
We were headed to Detroit but Jacob's Constraint Therapy in August conflicted with their availability. If he's going to have the surgery, I want his brain to be as stimulated as possible and his right side to be as functional as possible beforehand so we canceled our plans for Detroit. We'll be seeing an Epileptologist in Boston and then following up again with the neurosurgeon.
ReplyDeleteSounds like a good plan!
ReplyDeleteHonestly...having surgery closer to home will be MUCH easier! Who knows...maybe Trevy and I can swing a viz! :)
...danielle