Jacob is "free" years old. For his first day of preschool, I packed his Jacob backpack, given to us by Danielle and Jonathan (www.happybeingtrevy.com) prior to Jacob's surgery last December. All of our proverbial eggs were in that backpack in Boston and now... it is filled with diapers and wipes, a snack, and a drink. Jacob is taking 2 mL of valproic acid twice daily. I am sure that he has been outside of the therapeutic range for a few weeks and we have not seen any seizure activity.
So hard to believe what this three-year-old has experienced. And yet, he is a happy little boy. But Matthew is not. He was sure that when we woke up Monday morning that Jacob would be bigger. We even measured how big Jacob would be in comparison now that he would be turning three. Matthew was certain that Jacob would be a big boy, not a baby anymore. He would even let Jacob ride in the police car with him. But to Matthew's disappointment, Jacob was still a baby to him. I feel sorry for Matthew because he is experiencing what I have chosen to move past.
Jacob is not a typical three-year-old.
I found your blog through blogzilly. This post reminds me so much of our boys. Carson (6 with no medical issues) is big brother to Deacon (2 with seizure disorder and delays). It breaks my heart when I see Carson initiating a game of peek-a-boo that gets no reaction...
ReplyDeleteCongrats on being seizure free and off the meds!