Jacob is seizure-free and off of his anti-seizure medication. Disbelief. We NEVER missed a dose in a year and a half. The last vial of ACTH still resides in the refrigerator and I suppose the last bottle of valproic acid will remain on the counter top. We still have needles, syringes, gauze, and alcohol wipes in our cabinets. Never forget.
I often need to be reminded.
I was meaning to write a post titled "The Truth" because I have been feeling MISERABLE and OVERWHELMED for a few weeks. Why does everything always have to be so difficult? Jacob requires so much care and Matthew requires so much discipline. Ironically, Matthew is more difficult than Jacob. I will not apologize for or feel ashamed about how I have been feeling. My pity-party.
And then I am reminded as I give Jacob his acid-reflux medicine. I glance at the bottle of valproic acid and smile and set it aside.