Wednesday, October 19, 2011


Jacob is seizure-free and off of his anti-seizure medication. Disbelief. We NEVER missed a dose in a year and a half. The last vial of ACTH still resides in the refrigerator and I suppose the last bottle of valproic acid will remain on the counter top. We still have needles, syringes, gauze, and alcohol wipes in our cabinets. Never forget.

I often need to be reminded.

I was meaning to write a post titled "The Truth" because I have been feeling MISERABLE and OVERWHELMED for a few weeks. Why does everything always have to be so difficult? Jacob requires so much care and Matthew requires so much discipline. Ironically, Matthew is more difficult than Jacob. I will not apologize for or feel ashamed about how I have been feeling. My pity-party.

And then I am reminded as I give Jacob his acid-reflux medicine. I glance at the bottle of valproic acid and smile and set it aside.


  1. Just today I was telling someone that when I feel down, I remember you and Kim and how hard daily life can be for you. It makes me ashamed that I ever complain about anything in my life. You are my hero. You are an amazing, relentless mother, who advocates for the kids she loves.
    Grandma Christe

  2. Grandma Christe is so right. We all know how special these babies are. We also know how incredible the parents of special needs children are. You don't ever have to apologize for anything.

    hugs sweetheart

  3. You also have to take care of the dental health. There are several ways to control the behavior.