IFSP

This afternoon Jacob will have his annual evaluation for his IFSP (his service plan). I am keeping my fingers crossed because last year his scores were so low except for social and emotional skills. The truth is I am hoping that his cognitive scores have improved. We all know that he is an intelligent being but I guess I want to see it in writing.

The Week in Review

On Monday afternoon, Jacob had OT and Speech. In the evening, we were honored to receive the proceeds from the Oil Heat Institute of Rhode Island's Annual Charity Golf Tournament. Thank you Julie, Roberta, and Dennis for a special night.

On Tuesday morning, Jacob had PT and walked up Grandpa's street in his gait trainer.

On Wednesday afternoon, we saw Jacob's pediatric ophthalmologist who again suspected right hemianopsia but could not do a formal visual field test because he is still too young.

On Thursday morning, Daddy took Jacob to attend his first session of Aquatic Therapy at Hasbro Children's Rehabilitation Center. He loved it and worked very hard. The therapists thought he was adorable.

On Friday morning, Jacob had OT. In the afternoon, Grandma and Grandpa brought Matthew and Jacob to gymnastics at the YMCA. Mommy went home to do a load of laundry and dishes and to stuff her face and watch tv.

Mommy-Do Haircut

"Lawning" with Daddy

A Few of My Favorite Things

The fuzzy hair at the back of his head and the pile of curls on top, the gap between his front teeth, the lopsided gait, the sign for milk, and the sound of "aei" (airplane).

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The Dentist

Matthew had his first dentist appointment yesterday and I nearly had a nervous breakdown because the hygienist "scolded" me about brushing Matthew's teeth. When Matthew turned 2 years old, Jacob was only 2 months old. My Nana bought him a motorized fire engine toothbrush for his birthday because we were having trouble brushing his teeth. We thought he would be inspired. When we watched the Goodnight Show on PBS Sprout we would sing the brusha-brusha-brusha-brusha-brush song with Star but we were still having trouble brushing his teeth. When Matthew brushed his own teeth, he would scrub the front, suck the water from the toothbrush, eat the toothpaste, and gargle and choke on his cup of water. Once Jacob was sick... we definitely neglected Matthew's teeth which is why I finally made the appointment. No cavities and no plaque. Just some tartar. We brushed last night and this morning with some resistance... The Binky Fairy is next!

Take these broken wings and learn to fly...

As I follow other blogs to understand pediatric stroke and epilepsy surgery, I am reassured about our decision to pursue surgical intervention. Jacob's left hemisphere is junk. Yes, I said it. The condition of his left hemisphere makes him an ideal surgical candidate. Jacob will need to see a pediatric opthamologist to confirm a suspected diagnosis of hemianopsia or split vision. Each hemisphere of the brain controls one half of each eye. Without a functional left hemisphere, the right half of each eye is blind. Jacob will also need to be evaluated by an epileptologist. Finally, his case will be presented to the neurosurgical team and pending approval, surgery will be scheduled.

MAMA

Jacob imitated "mama" three different times today! Not "ma" or "ma...ma" but "mama".