The Story of Jacob: EEG Follow Up

Wednesday, March 17, 2010

EEG Follow Up

Jacob's medication was increased but his EEG did not show Infantile Spasms. Crisis averted. We will go back in April for another check up. Jacob is now receiving speech therapy and he likely will participate in Constraint Therapy again in August. Intervention is a wonderful thing.

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AnonymousMarch 17, 2010 at 1:29 PM
What great news! Let's hope you will soon be a chatterbox like your brother Matthew! I love you. Nana.
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AnonymousMarch 19, 2010 at 6:41 PM
HI all that was great news. I read it here at school with a few other teachers that have been watching Jacobs therapy. Lots of cheers here at the news. They all loved the new "WHEELS"
hang in there and keep praying.. see ya all soon love Auntie
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His Story

Jacob was diagnosed with Infantile Spasms on May 7, 2009, two days after we observed his first jacknife seizure. He was admitted to Hasbro Children's Hospital that afternoon to begin a course of treatment with ACTH. The next day, an MRI revealed the cause of the Infantile Spasms - a stroke in utero. Two-thirds of the left hemisphere of Jacob's brain was replaced by cerebrospinal fluid. We were discharged after four days and continued the ACTH treatment. After four weeks, the Infantile Spasms and hypsarrhythmia on his EEG were resolved but another seizure type emerged, complex partial epilepsy and myoclonic seizures.

Jacob was also diagnosed with right hemiparesis, a slight paralysis of the right side of his body. He made great strides walking independently but had limited functional use of his right hand. In February 2010, Jacob participated in the Constraint Therapy Program through Hasbro Children's Rehabilitation Center and participated again in August. The program involved intensive therapy with his right arm and hand. Jacob also received physical and occupational therapy and speech therapy through his Early Intervention Provider.

On December 22, 2010, Jacob underwent a left functional hemispherectomy, disconnecting the left hemisphere of his brain from the right hemisphere. Our hope was that he would be seizure-free and off of his anti-seizure medication.

Jacob did not have another seizure following his surgery and within nine months, he was weaned off of his anti-seizure medication.

Although early detection, aggressive treatment, intensive therapy, and self-advocacy have been essential to Jacob's rehabilitation, Jacob is blessed. He is an amazing surprise.

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Wednesday, March 17, 2010

EEG Follow Up

2 comments: