Day 26

The video includes pre- and post- evaluation
clips.

Dear "Followers"

To all who follow Jacob's blog, who carry the burden of our pain because we love Jacob so much... We would give an arm and a leg and even a brain if we could. We will see Jacob through this as we have done in this past year with our strength and support. Jacob is our hero. His will and desire are unparalleled and his tiny face gives us great hope.

Today will be a day to celebrate his accomplishments in the Constraint Therapy Program. As always, we have much to be grateful for. GO JACOB!

Day 25

Today Jacob was photographed to be in a brochure for Hasbro's Constraint Therapy Program. Tomorrow afternoon we will go to Hasbro Children's Rehabilitation Department to have his cast removed. We will be posting video of both his pre- and post- therapy evaluations.

Day 24

Jacob's EEG revealed a pattern characteristic
of the Infantile Spasms he experienced at six
months old. He will begin a new course of
drug treatment for the next three weeks and
then will have another EEG to see if the
pattern has been resolved.

Day 23

Jacob's walker came in today! Tomorrow morning we will see Jacob's pediatric neurologist to discuss the results of his EEG from last week.

Day 22

Day 21

Today was Jacob's last day off from therapy
until the cast is taken off on Friday.

Day 20

Day 19

Jacob will have therapy again tomorrow
before a well deserved day off on Sunday.

Day 18

This video clip actually is from yesterday.

Jacob had his cast change this morning and
next Friday it will be taken off.

Day 17

Day 16

Day 15

Day 14

Jacob IS able to pull up to stand.

On his day off from therapy, Jacob will watch
his brother ice skating and walk through the
Newport Winter Festival.

Happy Valentines Day!

Day 13

On his day off from therapy, Jacob visited with his Grammy and his Auntie Jen, Olivia, and Hayden.

After two weeks of therapy, Jacob frequently uses his right arm and hand, although he still tries to use his cast and his feet. He is able to give a high-five and is beginning to wave goodbye with his right hand. Jacob explores with his right hand when he is carried around the house. His greatest frustration continues to be his mobility but he is nearly able to pull himself up to stand. His walker should arrive within the next few weeks and will give him a greater sense of independence as well as the stability to improve his sense of balance.

Jacob is a lovely, special baby.

Day 12

Day 11

Jacob did well at Hasbro today and now we
wait for the results. The video includes a clip
of a seizure Jacob had last Sunday.

Day 10

Tomorrow morning, Jacob will go to Hasbro
Children's Hospital for a six-hour EEG with
video. We are hoping that this will help to
diagnose the suspected seizure activity that
we have observed over the last few months.
He will resume therapy on Friday and will
"make-up" for tomorrow on the following
Saturday.

Day 9

Day 8

Day 7

Today was Jacob's first day off from therapy.

Day 6

Jacob enjoyed his left fingers for a short time
this morning.

In the first clip, Jacob reaches with his right
hand when prompted even though his left
hand is free. In the second clip, Jacob holds
his fork with his right hand for an extended
period of time.

At the grocery store, Jacob used his right hand
to turn the wheel of his shopping cart car for
the very first time.

Day 5

Tomorrow morning, Jacob will have his cast
removed to take a bath and then the cast will
be replaced until next Friday.

Day 4

Day 3

Day 2

Day 1